Spokz People Community | Julie86 | Activity https://spokzpeople.org.uk/clp/member/julie86/activity/ Activity feed for Julie86. Tue, 28 Apr 2026 16:28:13 +0000 https://buddypress.org/?v=11.4.0 en-US 30 hourly 2 9a147de5391d2673a6e8b533e22d2525 Julie86 replied to the topic The Term "Sufferer" in the forum Community Chat https://spokzpeople.org.uk/forum/topic/the-term-sufferer/#post-6195 Wed, 13 Nov 2024 18:32:36 +0000 Thank you for your replies. I am hoping next time I go the chair of the meeting will ask that the word is not used.

]]> b3e28bb88e905fe3025d02d5c590db0d Julie86 started the topic The Term "Sufferer" in the forum Community Chat https://spokzpeople.org.uk/forum/topic/the-term-sufferer/ Thu, 07 Nov 2024 08:11:08 +0000 I sat in a meeting on Wednesday morning about adult social care. Usually the people in the room are referred to as people who draw on social care, people with lived experience, service users, customers, clients, unpaid carers, visually impaired etc.
For some reason on Wednesday a person in the group started calling us sufferers. Saying the…[Read more]

]]> 583a0792cac2ed485431e984c4dc944c Julie86 replied to the topic Want Ability Back in the forum Community Chat https://spokzpeople.org.uk/forum/topic/want-ability-back/#post-5927 Fri, 19 Apr 2024 15:21:54 +0000 I have been sorting through paperwork because it is something I can do. And I think coming across memories from times I could do was the trigger. But shredding old paper work is quite nice as I can imagine ripping people to pieces. So it is good and bad at the same time in one activity.
I am glad I am not alone in missing abilities I had. It…[Read more]

]]> 0830e41a35ea6e61d405f1fa7e493cb5 Julie86 started the topic Want Ability Back in the forum Community Chat https://spokzpeople.org.uk/forum/topic/want-ability-back/ Thu, 18 Apr 2024 16:50:51 +0000 Does anyone else get periods of time where they just want the ability back? Where you just want to walk across the fields again? Actually walk on your legs? I seem to have days where I miss the abilities I have lost due to the shrinkage in my small brain (cerebellum). I know I will continue to loose abilities as the years progress but it is…[Read more]

]]> 804476024988f9a0a8661b32b0445d24 Julie86 replied to the topic Words in the forum Community Chat https://spokzpeople.org.uk/forum/topic/words/#post-5786 Mon, 11 Mar 2024 18:54:37 +0000 I think I am the other way. Words pour out of me. But when they come in. They take a while to make sense. It is like a puzzle. I have to figure how the word is meant. My best example is The dog rides the train or how to train the dog. Both the same spoken word and same spelt word. But both have very different meanings.
I seem to find it harder…[Read more]

]]> 6eea81c1f7875474822d6390d3cbb457 Julie86 started the topic Words in the forum Community Chat https://spokzpeople.org.uk/forum/topic/words/ Thu, 07 Mar 2024 03:33:00 +0000 Words were the discussion topic in this week’s live event. We talked about being offended by words. How can you be offended by a word? How can a word cause you harm? The old wives tale of sticks and stones can break your bones but calling names cannot hurt you.
Each person views words differently.
I definitely view words differently because I…[Read more]

]]> df17c42d5ff716372ce69dddcd8c9fee Julie86 started the topic Mix up in the forum And the 'Winner' is...NHS/government stories https://spokzpeople.org.uk/forum/topic/mix-up/ Mon, 26 Feb 2024 16:39:58 +0000 I have no idea how the nurse today did this but please have a laugh!

I told the nurse I was having difficulties with low ferritin (iron) due to inflamed large intestines, swallowing issues and a sore mouth.

The same nurse rang back and said you need to use your emergency injection as you have had diahorrea more than six times in the day.…[Read more]

]]> e31bd0d9cc3a10d27041e3af8e016083 Julie86 replied to the topic Setbacks in the forum Community Chat https://spokzpeople.org.uk/forum/topic/setbacks/#post-5751 Wed, 14 Feb 2024 14:02:39 +0000 Thank you. That certainly gives me lot to think about.

]]> 38fac7181938a89292d52f9b72c71294 Julie86 started the topic Setbacks in the forum Community Chat https://spokzpeople.org.uk/forum/topic/setbacks/ Wed, 14 Feb 2024 05:28:09 +0000 In January 2024 I had quite a big physical health set back in an unexpected way. This has brought with it mental health challenges which I am finding the course material is helping me with. But I am also suffering physical health issues. I am not as sure how to deal with these and wondered if anyone in the forum had any suggestions? I am spending…[Read more]

]]> dd4eb3907b3d399bc0038d0e4c152e6b Julie86 started the topic Our negatives and ashamed in the forum Community Chat https://spokzpeople.org.uk/forum/topic/our-negatives-and-ashamed/ Tue, 06 Feb 2024 06:57:44 +0000 Just recently it has been getting to me that social services only see my negatives. They home in and focus on my negatives. The time I sat and screamed. The time I shouted at a care worker. The time I had forgotten to write make the bed on a care plan. Social services seem to like to hold on to all your negatives like a life sentence.
Do others…[Read more]

]]> b2e0f00d1e668d21d70e9f208cbddcd3 Julie86 started the topic Keep your cool kit in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/keep-your-cool-kit/ Sun, 04 Feb 2024 18:07:59 +0000 Me again, the keep your cool kit link isn’t working. Beginning to think it is my computer apologies if this is so.

]]> cb835c40e2169bf9d64d86a9ebe7738d Julie86 started the topic Free anger ladder in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/free-anger-ladder/ Sun, 04 Feb 2024 18:03:53 +0000 Hello Mel, the free anger ladder link is no longer working. Do you have another link for it or apdf for it please

]]> 21f1c0e09628bbd67a1d0fdb40e61963 Julie86 started the topic Suggestion in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/suggestion/ Sun, 04 Feb 2024 16:07:35 +0000 Hello Mel
I am looking at the trauma. Section 7.7 on the videos like the falling out of the cupboard one underneath how long the video clip is? It was very short and I didn’t realise and thought my computer had issues. Could you add it is a …… clip neareaxh video?
Sorry for not sending this as a message. I am not on my own computer. I am on a…[Read more]

]]> 3342d8a0c790c688ddf5099174d05ecc Julie86 started the topic Positions in the forum Let's talk about sex, baby! https://spokzpeople.org.uk/forum/topic/positions/ Wed, 20 Dec 2023 21:08:02 +0000 Ok I have an adjustable bed so this can move me to different positions. But if the man is on the bottom. And I the female is on the top. What equipment is out there to ensure I stay on top of the man and do not fall or roll off him?

]]> 689eef435a6a02153676c1a4ff7cccb2 Julie86 started the topic Christmas Chat in the forum Community Chat https://spokzpeople.org.uk/forum/topic/christmas-chat/ Wed, 20 Dec 2023 21:05:17 +0000 After a fun quiz thought it would be good to have a area to chat in over the next week or so. Will definitely miss the weekly sessions.

]]> 989bc9389bcb73136ff1d6c7a876fa63 Julie86 started the topic Things to do in the forum Community Chat https://spokzpeople.org.uk/forum/topic/things-to-do/ Fri, 01 Dec 2023 20:00:55 +0000 How do people go about finding new things to do? Recently I set off to find volunteering but everytime I asked I was told I had the skills to be employed. As much as I appreciated the compliment I do not feel now is the time.
I have now given up on volunteering at least until January. But was wondering how others go about finding new things to…[Read more]

]]> 7707d9a4b1ebd517eea433a155bb91f3 Julie86 started the topic Benefits Advisors in the forum Benefits https://spokzpeople.org.uk/forum/topic/benefits-advisors/ Fri, 01 Dec 2023 19:57:06 +0000 Does anyone know where you can find Benefit Advisors?

]]> ee8309791eb454a273dd1692fd554395 Julie86 replied to the topic Social Worker is ....... in the forum Funny Stories https://spokzpeople.org.uk/forum/topic/which-day-happens-first/#post-5548 Fri, 25 Aug 2023 11:58:29 +0000 On the Monday only one of us was unwell and the agreement for the unwell plans. Is we only ask for them when both are unwell.
So on the Wednesday when we said yes please. We were both unwell.
Do not think social workers are used to people follow agreements.

]]> 8e53e50eabf69f6345dea6d0a543bde4 Julie86 started the topic Social Worker is ....... in the forum Funny Stories https://spokzpeople.org.uk/forum/topic/which-day-happens-first/ Fri, 25 Aug 2023 09:58:25 +0000 On Monday our social worker emailed asking if we needed our unwell plans. We said no thank you.
On Wednesday our social worker emailed asking if we needed our unwell plans. We said yes please.
On Friday our social worker said on Monday you said no thank you to your unwell plans but on Wednesday you said yes please. Can you confirm if you would…[Read more]

]]> d7d9b49317c809b0cec105a4dcb5720a Julie86 started the topic Confidence in the forum Community Chat https://spokzpeople.org.uk/forum/topic/confidence/ Thu, 29 Jun 2023 12:08:10 +0000 I liked the idea of you needing other people to be able to build your confidence. Building confidence isn’t something you can do alone .
This comment has stayed with me overnight since the session.

]]> fdabc2473c5ace8faf2363f2a86f6107 Julie86 replied to the topic Finding a Buddy in the forum Buddy Introductions https://spokzpeople.org.uk/forum/topic/finding-a-buddy/page/2/#post-5343 Thu, 29 Jun 2023 12:05:36 +0000 Hi Mel, I am apparently too fast for the others. So I am just going it alone. Kinda got stuck on chapter three. The art is remembering to come on. Will get there one day. Julie

]]> 5a43cfbc4ef7793c742a356b8d6e2c52 Julie86 replied to the topic Forum Title Ideas in the forum And the 'Winner' is...NHS/government stories https://spokzpeople.org.uk/forum/topic/forum-title-ideas/#post-5342 Thu, 29 Jun 2023 12:02:12 +0000 Or Epic Olympics

]]> 7455e3be8c1f536ba6658859b2561a3d Julie86 replied to the topic Forum Title Ideas in the forum And the 'Winner' is...NHS/government stories https://spokzpeople.org.uk/forum/topic/forum-title-ideas/#post-5341 Thu, 29 Jun 2023 12:01:43 +0000 Like Epic Fail Awards

]]> 9904cceefa7f31e0f87a4226355e511f Julie86 started the topic Trained Person in the forum And the 'Winner' is...NHS/government stories https://spokzpeople.org.uk/forum/topic/trained-person/ Thu, 29 Jun 2023 11:57:32 +0000 Social services You must be with a person trained in the Injection.
Social services we don’t offer anyone trained in injections.
Social services you must have a risk assessment because you must be with a person trained in injections.
Social services wrote risk assessment.
Social services. You don’t need to be with anyone trained in injections…[Read more]

]]> 1e956bd41fc2e1fe221cf8f3463036e8 Julie86 started the topic Ombudsman in the forum Community Chat https://spokzpeople.org.uk/forum/topic/ombudsman/ Mon, 05 Jun 2023 07:40:19 +0000 Taking an organisation to the ombudsman is another isolating journey.
You go there and the organisation gets told you have taken them there. Then the organisation goes quiet and the ombudsman remains quiet. The processes seem to go on for weeks with no one speaking to you. They ask you not to put anything about the topic of investigation on…[Read more]

]]> 23ce3577a7192118fb7ec2b4f8389ef9 Julie86 started the topic Chapter Three in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/chapter-three/ Mon, 05 Jun 2023 07:33:22 +0000 Feel free to add comments about what you have read or pondered on.

]]> 858681b07e591d70656778bd4a1da180 Julie86 replied to the topic Chapter Two in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/chapter-two/#post-5250 Mon, 29 May 2023 06:58:48 +0000 Read about the mouse looking for the cheese and the mouse fleeing the owl.
This makes sense to me. When I am making goals and working out ways to achieve my goals. I get more and more creative. The more goals I achieve the more my mood improves.

]]> f8ec1c37e5e33310cc8913d83583967b Julie86 replied to the topic Chapter Two in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/chapter-two/#post-5249 Mon, 29 May 2023 06:41:29 +0000 I get the sense of isolation a lot. I find it really difficult to be reliant on my family. This means I can only make friends online. The problem with this is you do not know when people will reply. Online isn’t the same as meeting someone in person or knowing you can telephone them.
I often feel isolated and this leads to me feeling low in mood a…[Read more]

]]> 27894b952a945bda803f25ae59451e8d Julie86 started the topic Chapter Two in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/chapter-two/ Mon, 29 May 2023 06:34:05 +0000 A place to discuss thoughts and reflections on Chapter Two.

]]> 2c9296ac49ffaf68f3f6c03cf5048803 Julie86 replied to the topic Safe space in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/safe-space/page/2/#post-5245 Sun, 28 May 2023 06:32:03 +0000 I have tried the binaural beats before and found it makes me feel quite on edge and the opposite of relaxed.
I might give it another try though.

I am going to explore more music this week.

I also find audiobooks good because I can escape into a favourite book that I know well.

I think I am more of an ears type person.

I have been…[Read more]

]]> 3f3d336f3a429c035d4890c02d408445 Julie86 replied to the topic Mental Capacity in the forum Community Chat https://spokzpeople.org.uk/forum/topic/mental-capacity/#post-5244 Sun, 28 May 2023 06:27:21 +0000 Thank you for the replies. I will ask them straight out. My next meeting is 6th June 2023. Currently enjoying the peace and quiet of them leaving me alone with the once per week support worker. The care agency are treating me similar to how council are treating me but they are at same meeting on 6th June 2023. So will hear question too.

]]> d42e183f1d9c1ba94d32cc6727bdb9dd Julie86 replied to the topic Safe space in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/safe-space/#post-5238 Sat, 27 May 2023 08:48:52 +0000 I am wondering if my safe space could be in a piece of music. I often like to close my eyes when I am overwhelmed but do not like silence. I am going to explore pieces of music. Like ones by Holst as this has angry and calm sections that my mind can become lost in. For me it will probably be classical music or Christian music but I guess any music…[Read more]

]]> c14b51d50f1480da565e9b27c18a434a Julie86 replied to the topic Buddy Chat in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/buddy-chat/#post-5237 Sat, 27 May 2023 08:39:35 +0000 I cannot do the exercises because they go against my respiratory physio therapy that I am having to get my breathing back to a normal pattern. I have to make sure my in breath, out breath and pause are all only done for two counts.

I could do with strategies for overwhelm that do not involve breathing. I get lots of overwhelm especially when…[Read more]

]]> 3b595d3d4d6ce39ac640d574c475f653 Julie86 replied to the topic Finding a Buddy in the forum Buddy Introductions https://spokzpeople.org.uk/forum/topic/finding-a-buddy/#post-5204 Mon, 22 May 2023 18:19:00 +0000 No probs. Perhaps onlyAlex and Chloe may wish to be buddy’s.
I won’t be doing a chapter per day.
Moderator I cannot find module reflections. Sorry!

]]> a2187c79ac7b061eeab81b38f60f550d Julie86 started the topic Chapter one in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/chapter-one/ Mon, 22 May 2023 06:32:57 +0000 For those who are joining in with going through the programme in 2023 put your comments below

]]> 99fd410fb016997dabceb3889b145cba Julie86 replied to the topic Finding a Buddy in the forum Buddy Introductions https://spokzpeople.org.uk/forum/topic/finding-a-buddy/#post-5200 Mon, 22 May 2023 06:31:06 +0000 Mel actually recommends doing it per day. But that is too fast for me.
Hense per week. So why not do per segment. So chapter 1 is only chapter 1. Then when we get to the bits that are 4.1 and 4.2 we can see how we do but mainly per week. My task will be remembering to do it. Off to look for the module reflections that the moderator says we need to…[Read more]

]]> fa3cec1eab01b822331eb7094733f2d7 Julie86 replied to the topic Finding a Buddy in the forum Buddy Introductions https://spokzpeople.org.uk/forum/topic/finding-a-buddy/#post-5195 Sun, 21 May 2023 17:56:19 +0000 I have started again at chapter one Chloe and Alex. How fast do you want to go? Do you think one chapter per week? So next week be chapter one and discuss it?

]]> 51b5d74a2fa8c2e60b9943160a623f46 Julie86 replied to the topic Buddy Chat in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/buddy-chat/#post-5191 Sat, 20 May 2023 05:07:24 +0000 Chapter one is called Emergency Support. What are peoples thoughts on it?

]]> 74ad39411196acb5233de4463a811458 Julie86 started the topic Buddy Chat in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/buddy-chat/ Sat, 20 May 2023 05:01:46 +0000 Put this here for anyone who wants a buddy to go through programme. Reply where you are up to and what your thoughts are about what chapter you are doing. Let’s chat as there seems to be three people who want a buddy and I don’t want to leave anyone out as there isn’t either for pairs at the moment. Shall we all start at chapter one and discu…[Read more]

]]> 105bc613d8f8b5efda7029b94f0463da Julie86 replied to the topic Self-care ideas in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/self-care-ideas/#post-5188 Sat, 20 May 2023 04:58:49 +0000 And I too am often other peoples agony aunts. They come to
Me in full meltdown. I listen and hear them. Once the meltdown is over I don’t hear from them for ages.
I try not to do this to other people. I try to ask people how they are and chat about them.
It is hard as I don’t want to bore people. I don’t have have special interest topic. My speci…[Read more]

]]> 95c9a712a4b07b0f2c46d8b1def354d7 Julie86 replied to the topic Self-care ideas in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/self-care-ideas/#post-5187 Sat, 20 May 2023 04:55:51 +0000 What about your sewing? Does that help you to focus on you for a while and get some time out of your situation? Self care can be anything that takes your mind out of your situation.

]]> 177cc351a98cb6ef81611e4a883e46fe Julie86 replied to the topic Finding a Buddy in the forum Buddy Introductions https://spokzpeople.org.uk/forum/topic/finding-a-buddy/#post-5186 Sat, 20 May 2023 04:54:14 +0000 I think the idea is to motivate each other through the course. To discuss what we learn.
Perhaps if all the people in the thread were happy we could work through together. As in OnlyAlex, Chloe and me. Is there a thread set up where you can chat about the course in the forum?

]]> f99c9c4a27619f13343118d73dcf3009 Julie86 started the topic Mental Capacity in the forum Community Chat https://spokzpeople.org.uk/forum/topic/mental-capacity/ Thu, 18 May 2023 07:26:44 +0000 How does the whole mental capacity work? I have reason to believe my council are treating me like I don’t have mental capacity. I have discussed it with my GP and he agrees they are treating me like I don’t have mental capacity.
But if this is the case do I have any rights? Can I have any say? Can the council stop me from doing? Can the cou…[Read more]

]]> 4989e5b8a7e14463169783c87ab19ddd Julie86 replied to the topic Finding a Buddy in the forum Buddy Introductions https://spokzpeople.org.uk/forum/topic/finding-a-buddy/#post-5173 Sat, 13 May 2023 09:00:44 +0000 I am interested in finding a buddy. I am 37 years old. I have triple x syndrome with autism too.
I am up to chapter 3 in the programme.

]]> 1cf1ff29e96f6ef260b8444901a604d9 Julie86 started the topic Freelance in the forum Employment & Volunteering https://spokzpeople.org.uk/forum/topic/freelance/ Sat, 13 May 2023 08:57:58 +0000 What is the process to become Freelance as a Disabled Person?

]]> 4fa43793ffe555e3c6f36c4b6e12aa7a Julie86 started the topic Supported by family in the forum Community Chat https://spokzpeople.org.uk/forum/topic/supported-by-family/ Wed, 10 May 2023 20:07:55 +0000 Sorry having to write this question here before I forget it. How do you go about getting your care in the work place? At the moment I do my husbands care and he does my care. I doubt it will be possible to get us both employment in the same work place.
Social care cannot support us apart at the moment. So how would this all work if I was to get…[Read more]

]]> c33329dc96e7cf7f6507d3fdf980e6dd Julie86 started the topic Split or Joint Funding in the forum Community Chat https://spokzpeople.org.uk/forum/topic/split-or-joint-funding/ Sun, 07 May 2023 06:19:47 +0000 I have been awarded split / joint funding. 10% nhs and 90% council.
Does anyone know how this will manifest?
I have a care agency coming in one day per week.
Will anything change?

]]> 74b78d68855bc038ad15adb38f900546 Julie86 replied to the topic 4th January 2023 - Zoom in the forum Community Chat https://spokzpeople.org.uk/forum/topic/4th-january-2023-zoom/#post-5060 Wed, 26 Apr 2023 20:15:53 +0000 I feel a lot of the assessments are designed to catch us out. And the way legislation can be taken the way the councils decides makes it harder for us. We are like Chloe said tonight just a number.

]]> 6d4f46bd306577eaed7687fba93dcf71 Julie86 replied to the topic Safe space in the forum Wellbeing Programme https://spokzpeople.org.uk/forum/topic/safe-space/#post-5058 Wed, 26 Apr 2023 20:11:02 +0000 I took it to mean an imaginary place. As it was near Easter when I read this chapter I decided my safe space at that time was sat on the hill in front of the cross. My safe space may change through out the year. I just need to remember to go to my safe space when everything is getting too much.

]]> 70aad9a3fed95f0f5057e9affbd2c743 Julie86 started the topic 4th January 2023 - Zoom in the forum Community Chat https://spokzpeople.org.uk/forum/topic/4th-january-2023-zoom/ Tue, 10 Jan 2023 07:19:14 +0000 Hi, I have finally been on you tube and found biscuit land. I am a little puzzled by the time and task. In my area assessments are no longer done using the time and task approach. Assessments are done based on a Strength based approach. So a social worker asks you what your strengths are and then suggests ways your strengths can be used to meet…[Read more]

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